We submitted our application to the JDRF Children’s Congress early last week and in so doing took one more potential step from the shadows of obscurity into the spotlight that is the ardent voice of advocacy and awareness. Our story. Our faces. Our family. There are two things that
Part Two I was introduced to Jimmy Buffett’s music on prom night of my senior year, twenty-seven years ago. The song was: Why Don’t We Get Drunk and Screw, and while the song may have been appropriate for the season (or not), it left an impression on me
This journal has been my place over these past eight months to reflect, vent, discover and in some cases even procrastinate, all in the worthwhile interest of coming to terms with Lia’s juvenile diabetes. I like to think we are all better because of it, and we are, all
Loves to sing * Tells long stories * Was born in an ambulance * Likes to make people laugh * Plays dress up * Has a beautiful voice * swims like the Man from Atlantis * Favorite color is blue * Favorite poem: Stopping by Woods on a Snowy Evening * Loves to camp and hike * Being outdoors * Knows
Back now to the daily opus of attention paid Lia’s diabetes. Her wellness of course is always on our minds and as such our strategy in treating the disease is simple: be open to anything that will multiply our opportunities to know it, treat it, and deal with it
Simplicity, simplicity, simplicity! I say, let your affairs be as two or three, and not a hundred or a thousand … Simplify, simplify — Henry David Thoreau But where do you begin? What does more, not less, community look like? Who do you turn to in shaping alliances that will make for
From the day I had launched Without Envy I had read and written enough of my own to find appealing the degree of anonymity other authors had chosen to pursue in terms of their privacy. They were writers of great masterpieces — To Kill a Mockingbird, The Catcher in the Rye,
Lia’s Walk to Cure Video https://youtu.be/-RKnrevaERs
Once, last week, on a day I had work that would take me away from the house, I drove Lia to the school where Franca teaches so that she could stay with her mother. It was summer vacation still and Lia was happy to be going to the school because
In some parts they call it catting. In others, it’s hogging or stumping or dogging. If it is trout, not catfish, you are after, it is considered art, not a sport, and known to practitioners as tickling. However, those of, shall we say, a bit more extreme-minded personality, prefer
Other than early on when we had this beast by the tail and no idea what we were doing, there have been only a handful of occasions where we were truly and very stressed for Lia’s immediate safety. Not that there’s not enough room for that kind of
When it was through multiple daily injections instead of a pump that we delivered insulin to Lia, minus the early emotional strain, it was a fairly straightforward method of managing her diabetes. Or as straightforward as any such nearly impossible task can be. Three times a day she ate a