Tag Archives | The First Year

Words Without Envy

The way the year ended was pretty much the way that it started with a trip to the children’s wing of the hospital. Only this time our purpose there was not to admit Lia for what would become a very long and arduous twelve months discovering and treating diabetes, but to visit the children who […]

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Pajama Walks

The Things We Have Now It was a cold, beautiful night with fresh snow on the ground and because it was cold and had snowed we stayed in our day clothes after dinner and put on our boots and heavy winter jackets and slipped on our gloves and knit caps and looked like a party […]

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Roughly Speaking

roughly 2,000 finger sticks roughly 500 middle of the night blood sugar checks roughly 700 shots roughly 60 infusion set changes roughly 200 episodes of hypoglycemia roughly 1000 episodes of hyperglycemia roughly feeling like a perfectly fine nine year old 1.5 days out of every 3 roughly counting 45,000 carbohydrates roughly dosing 5,000 units of […]

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In Each Our Own Voice,
Every Step of the Way

Since Lia’s diagnosis eleven and a half months ago one of the things we’ve been watchful of and spent many long hours safeguarding against was the effect diabetes would have, if any, on everyone’s self-esteem. We watched out especially for Lia’s, but our worry was not limited to her well-being alone. Before this disease it […]

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External Genetistry

It was a common yet unproductive habit in the days, weeks and months following Lia’s diagnosis to do as any worried parent might do and question every external encounter or genetic mutation in our family history in pursuit of where had this come from. Often it wasn’t a very long thought, really more of a […]

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I am, She is, We are

We submitted our application to the JDRF Children’s Congress early last week and in so doing took one more potential step from the shadows of obscurity into the spotlight that is the ardent voice of advocacy and awareness. Our story. Our faces. Our family. There are two things that stand out about this. One, it […]

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What Would Jimmy Buffett Do (or If I Live to be Ninety)

This journal has been my place over these past eight months to reflect, vent, discover and in some cases even procrastinate, all in the worthwhile interest of coming to terms with Lia’s juvenile diabetes. I like to think we are all better because of it, and we are, all of us, better for just keeping […]

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on being lia

Loves to sing * Tells long stories * Was born in an ambulance * Likes to make people laugh * Plays dress up * Has a beautiful voice * swims like the Man from Atlantis * Favorite color is blue * Favorite poem: Stopping by Woods on a Snowy Evening * Loves to camp and […]

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Revelation

From the day I had launched Without Envy I had read and written enough of my own to find appealing the degree of anonymity other authors had chosen to pursue in terms of their privacy. They were writers of great masterpieces — To Kill a Mockingbird, The Catcher in the Rye, The Road — and […]

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Noodling

In some parts they call it catting. In others, it’s hogging or stumping or dogging. If it is trout, not catfish, you are after, it is considered art, not a sport, and known to practitioners as tickling. However, those of, shall we say, a bit more extreme-minded personality, prefer something a bit ornerier as their […]

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