Fear and Loathing in D-vegas

It sounds crazy, but it’s easy sometimes to forget, who in our house has diabetes. Just for this post, for example, I mentioned to Franca while standing at the kitchen sink last night that today’s blog week assignment was to list ten things I hate about diabetes. We were alone and for both of us the usual noxious sentiments we’d been feeling the past seventeen months began sounding off in our heads, things like the greater health risk, the predicament of tighter control, the regrettable loss of youth and spontaneity.

At the same time, Lia was in the next room over playing the piano and when she overheard us talking, she called out, “Can I do that?” And there it was, her small-but-heedful voice keen to remind us: this isn’t your disease. You’re not the one with diabetes.

And we aren’t, though there’s never a moment in the day we wouldn’t trade places with her, and while the things we don’t like about diabetes have certain similarities in the overall manner of speaking, there is no mistaking our long-term worry for the malice harbored by a nine-year old in the day-to-day struggle for dominance.

It’s easy, also, especially as a parent, when you get such a gift from a child as involvement and ownership to find error in their understanding and then attempt to correct it. Indeed, as Lia read her list to us it was difficult not to stop her and say, “Well, sweetheart, that’s not exactly true, is it?” But “sometimes” for kids means “always” and sometimes “always” means “on occasion”, so we started then rejected the urge to auto-correct her on any part of her list. This is, after all, how she sees it and how she sees it means everything to her, whether or not that assimilation is accurate. It fits perfectly  the age-old adage, don’t knock it till you walk in my shoes, and is, for all of us, one of the most valuable life lessons we can learn.

So, without further ado, here it is, the unadulterated, Ten Things I Hate about Diabetes, Lia Rosa edition.

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Ten Things Why I  Hate Diabetes
by Lia

  1. I hate to test every single hour when I’m doing testing w/ my BG numbers.
  2. Whenever I’m high, I always have to wait so long.
  3. I can only eat “FREE” stuff in the morning for snack sometimes.
  4. When I’m at school, every time I’m low or high, I need to call my dad and I miss most of the lesson, so I have to read it over.
  5. I always hate getting asked what my pump is and when I tell them they always say, “Huh!?”
  6. When I test, I always get stared at and even if I do it in my desk, and I ask them to stop nicely, they look away, and…..BOOOM!…….they look again.
  7. I always have to change my site when I am having fun or a friend over.
  8. I always have to weigh everything that we don’t have a carb count.
  9. My dad always has the JDRF meetings.
  10. I always get asked or told, “Are you allowed to have this?” or, “I know you aren’t allowed to have this, so I got you sugar free cookies.” or, “Do you want me to give you this so you can give it to your sister?”

 

14 thoughts on “Fear and Loathing in D-vegas

  1. Wo Hooo for Lia Steve! I loved her list. Today and tomorrow, Joe took over for blog week. You are right…it is easy, as a parent, to lose ourselves in the disease and forget it is they that are “living” it.

  2. Last week when I read my kid the list of blog week topics, this was the only one she wanted to tackle. But when she got home from school today, she wasn’t feeling it. However, I shared some of the other posts from kids today and she certainly related most to Lia’s. especially #10! Thanks to her for sharing.

  3. As a PWD I really get what Lia hates, although, I’m the one going to JDRF meetings. But the one that I teared up at was #10, please give her a hug for me!!

  4. You hit on such key points. It IS easy to forget who has diabetes. It feels as much my disease, or my husband’s disease, as it does Jack’s.

    Sometimes, always, and on occasion — they do get mixed up, don’t they?

    I’m sure Lia’s list would hit home with Jack.

  5. Very nice list! Sounds all too familiar! Lia has a great sense of humor 🙂 I loved the “Booom!…they look again” That really cracked me up and it’s exactly the way it is!

  6. I’m so glad that she chimed in and you and Karen gave her the chance to express herself this way. The list has a lot of similarities to Caleb’s.

  7. I thought I would cry, but I’m happy to report I LAUGHED OUT LOUD! No. 9 was almost my favorite, until I read No. 10.

  8. I love her honesty and I love that you had her do it. I did the same with Grace. And you are right, it is HER diabetes, she has different things she hates about it and I have mine. But it is hers and hers alone. And you are so good not to correct her and have her view it your way. It about ripped me up to have her hand me the list and for me not to correct it or add to it or say anything.
    We have very strong kids Steve. And that is wonderful.

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