It sounds crazy, but it’s easy sometimes to forget, who in our house has diabetes. Just for this post, for example, I mentioned to Franca while standing at the kitchen sink last night that today’s blog week assignment was to list ten things I hate about diabetes. We were alone and for both of us the usual noxious sentiments we’d been feeling the past seventeen months began sounding off in our heads, things like the greater health risk, the predicament of tighter control, the regrettable loss of youth and spontaneity.
At the same time, Lia was in the next room over playing the piano and when she overheard us talking, she called out, “Can I do that?” And there it was, her small-but-heedful voice keen to remind us: this isn’t your disease. You’re not the one with diabetes.
And we aren’t, though there’s never a moment in the day we wouldn’t trade places with her, and while the things we don’t like about diabetes have certain similarities in the overall manner of speaking, there is no mistaking our long-term worry for the malice harbored by a nine-year old in the day-to-day struggle for dominance.
It’s easy, also, especially as a parent, when you get such a gift from a child as involvement and ownership to find error in their understanding and then attempt to correct it. Indeed, as Lia read her list to us it was difficult not to stop her and say, “Well, sweetheart, that’s not exactly true, is it?” But “sometimes” for kids means “always” and sometimes “always” means “on occasion”, so we started then rejected the urge to auto-correct her on any part of her list. This is, after all, how she sees it and how she sees it means everything to her, whether or not that assimilation is accurate. It fits perfectly the age-old adage, don’t knock it till you walk in my shoes, and is, for all of us, one of the most valuable life lessons we can learn.
So, without further ado, here it is, the unadulterated, Ten Things I Hate about Diabetes, Lia Rosa edition.
Ten Things Why I Hate Diabetes
- I hate to test every single hour when I’m doing testing w/ my BG numbers.
- Whenever I’m high, I always have to wait so long.
- I can only eat “FREE” stuff in the morning for snack sometimes.
- When I’m at school, every time I’m low or high, I need to call my dad and I miss most of the lesson, so I have to read it over.
- I always hate getting asked what my pump is and when I tell them they always say, “Huh!?”
- When I test, I always get stared at and even if I do it in my desk, and I ask them to stop nicely, they look away, and…..BOOOM!…….they look again.
- I always have to change my site when I am having fun or a friend over.
- I always have to weigh everything that we don’t have a carb count.
- My dad always has the JDRF meetings.
- I always get asked or told, “Are you allowed to have this?” or, “I know you aren’t allowed to have this, so I got you sugar free cookies.” or, “Do you want me to give you this so you can give it to your sister?”