Comments on: Knowing Beans http://withoutenvy.com/2010/03/02/knowing-beans/ Raising a child with type 1 diabetes to live life to the fullest, and other things that make us happy Thu, 12 Jan 2012 02:09:35 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Patricia Debney http://withoutenvy.com/2010/03/02/knowing-beans/#comment-50 Patricia Debney Thu, 04 Mar 2010 11:17:25 +0000 http://withoutenvy.com/?p=238#comment-50 Oh man, so here so much of the time! The rewards I'm sure are all long-term, as your comments point out... The deep frustration of this at times is that there is no end result, no arrival. Here is the true meaning of *chronic*. I guess I do have great hopes that the bad fairy (in our house, the ghost!)will gradually become less constantly present, and I think this will help -- by this I mean that with therapy advances, slowly but surely things will ease even more... We too pour over logbooks -- for us, a computer. We usually do it every two days. Our spreadsheet automatically colours things, so we can see at a glance what's what. It's a little less intensive then. But like another commenter, we have also found that a longer overview gives the most information. A moment by moment is deeply and horribly confusing. One more thing: pasta. Yikes! We can communicate separately about this. We have it pretty much sussed now, but wow this and rice... Great post. Oh man, so here so much of the time! The rewards I’m sure are all long-term, as your comments point out… The deep frustration of this at times is that there is no end result, no arrival. Here is the true meaning of *chronic*.

I guess I do have great hopes that the bad fairy (in our house, the ghost!)will gradually become less constantly present, and I think this will help — by this I mean that with therapy advances, slowly but surely things will ease even more…

We too pour over logbooks — for us, a computer. We usually do it every two days. Our spreadsheet automatically colours things, so we can see at a glance what’s what. It’s a little less intensive then.

But like another commenter, we have also found that a longer overview gives the most information. A moment by moment is deeply and horribly confusing.

One more thing: pasta. Yikes! We can communicate separately about this. We have it pretty much sussed now, but wow this and rice…

Great post.

]]> By: Penny http://withoutenvy.com/2010/03/02/knowing-beans/#comment-49 Penny Wed, 03 Mar 2010 15:56:32 +0000 http://withoutenvy.com/?p=238#comment-49 Wonderful post. I remember in January 2009 coming home from the hospital and Googling T1 in children. I closed the computer with tears in my eyes. There is too much to know and I am only one Mom. That night I tried again, but went to the major sites only - JDRF, ADA. I promised myself I would read two a night for a week. Slowly two grew into 4, then 8, then when I finally could handle the information, I let myself decide whether the info would help me or not. I remember the overwhelming. In the end, I think the harvest comes when we apply what we know, we do our best to move to a 'new normal' and get on with the process of being a family with a diabetic member now. I hope that in the end, my daughter sees herself as a person with diabetes who can truly do anything. I hope that she gains this strength from her family who has learned so much, who has courage that they tried to show her and who did the best they could. Wonderful post. I remember in January 2009 coming home from the hospital and Googling T1 in children. I closed the computer with tears in my eyes. There is too much to know and I am only one Mom.
That night I tried again, but went to the major sites only – JDRF, ADA. I promised myself I would read two a night for a week. Slowly two grew into 4, then 8, then when I finally could handle the information, I let myself decide whether the info would help me or not. I remember the overwhelming.
In the end, I think the harvest comes when we apply what we know, we do our best to move to a ‘new normal’ and get on with the process of being a family with a diabetic member now. I hope that in the end, my daughter sees herself as a person with diabetes who can truly do anything. I hope that she gains this strength from her family who has learned so much, who has courage that they tried to show her and who did the best they could.

]]> By: Jules Budd http://withoutenvy.com/2010/03/02/knowing-beans/#comment-48 Jules Budd Wed, 03 Mar 2010 12:16:37 +0000 http://withoutenvy.com/?p=238#comment-48 There is no end to knowledge, I imagine. The harvest will be in creatng in your daughter a balanced human being able to step confidently forth into the world and play the role she wishes to when she is ready. For Frank, I hope to help him find a way to live however he wants to. The diabetes is along for the ride, kind of like the uninvited bad fairy at the party, but it will be put in its place: always bloody there but not the star of the show. (Sorry for swearing, but being British I hope it sounds endearing and posh!). Still love your writing so much. There is no end to knowledge, I imagine.
The harvest will be in creatng in your daughter a balanced human being able to step confidently forth into the world and play the role she wishes to when she is ready. For Frank, I hope to help him find a way to live however he wants to. The diabetes is along for the ride, kind of like the uninvited bad fairy at the party, but it will be put in its place: always bloody there but not the star of the show. (Sorry for swearing, but being British I hope it sounds endearing and posh!).
Still love your writing so much.

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